The Case of the Bone Marrow Buyer

Should a desperate mother be allowed to entice donors with cash? You be the judge.

By Vicki Glembocki
Also published in Reader's Digest Magazine July 2014

bone marrow motherNoma Bar for Reader’s Digest

All Doreen Gummoe could do was hope. Her daughter Jordan Flynn had been born with Fanconi anemia, a rare inherited blood disorder that destroys bone marrow and makes sufferers highly susceptible to cancer. In spring 2012, when Jordan was 14, doctors found preleukemia cells in her blood. Without an immediate bone marrow transplant, she would likely die within months.

Typically, siblings are the most viable donors, but Jordan’s brothers weren’t matches. In 2005, Gummoe had given birth to twin girls, Julia and Jorja, who also have Fanconi anemia. Someday, they will likely each need transplants as well.

Gummoe, who lives in Lewiston, Maine, turned to the National Marrow Donor Program’s registry, praying to find a willing donor for Jordan in the 2 percent of people who are registered. Sometimes a donor isn’t willing to undergo the procedure, even if he or she is a match. Years ago, transplants required a painful biopsy in the pelvic bone. Today, the most common, and virtually painless, method, apheresis, involves connecting donors to a machine that draws blood, harvests stem cells, and returns the blood, which naturally regenerates the stem cells that have been removed.

“If there were compensation for bone marrow donors, that might put more people in the registry,” says Gummoe. “There’d be a better chance of finding a donor.”

However, according to 1984’s National Organ Transplant Act (NOTA), buying and selling organs, including bone marrow, is illegal. So in 2009—two and a half years before Jordan would need her transplant—Gummoe became the lead plaintiff in a lawsuit filed against the U.S. attorney general to challenge that law.

“It’s legal for people to pay for blood, sperm, and eggs,” argues 
Jeff Rowes, attorney for Institute for Justice, the nonprofit, public-interest law firm that filed the suit. “Plus, it’s crazy to lump in bone marrow with solid organs, like kidneys, that a donor can’t grow back.”

The government responded that the “statute plainly classifies ‘bone marrow’ as an organ for which compensation is prohibited.” 
Furthermore, by enacting NOTA into law, Congress took the position that “human body parts should not be viewed as commodities.”

Should it be legal to pay donors for bone marrow? You be the judge.

Next: The Verdict

  • Your Comments

    • Anonymous

      Yes, if it grows back, it should be legal to sell. If it doesn’t grow back, it should only be used for life-or-death situations-not bribes of cash. While the girl in this story does have a life-or-death situation, bone marrows should be used only when absolutely necessary. You can do what you must do without cash.

    • Robin

      It is wrong for the government to control this deep into our health. It seems to me that mom feels that if doners were paid then instead of 2% of doners to choose from there would be many more come forward. My son while in college told me the biggest income for them was plasma withdraws. Im a nurse Pheresis is as simple as hooking up an IV line and u sit in a comfy chair while saving a person’s life. My mother just died because her insurers wouldn’t pay for a simple stem cell transplant…. if only the government knew she never got to sit in that comphy chair and wouldn’t die. It’s a simple process…… everyone think about it. if we could have paid someone we would have to save her but unfortunately that was not the case. i ultimately left that job because I couldn’t deal with the constant red tape and people dying left and right from government control.

    • Bob

      Donating bone marrow, even by apheresis, is so much more complicated than donating blood. There are so many different factors involved that the two cannot really be compared.

      Plus, putting money into the equation would disturb the equilibrium.

    • live and let live.

      Stop having meetings about what I can and cannot do with my body. I can feed it, tan it, shave it, use it, sell it, rent it, pawn it, kill it, abuse it, spoil it, love it, share it…whatever. It’s mine, end of story.