When Muhammad Ali and I married, he had already been diagnosed with Parkinson’s syndrome. Later that diagnosis was changed to Parkinson’s disease, which meant Muhammad’s condition would progress as time went on. Never having met anyone with Parkinson’s disease, I felt alone. There was no one for me to talk to who was in a similar situation.
Looking back, I wish I’d had a better understanding of the disease as well as the role of the caregiver. I have since learned a lot about caregiving that, had I known years ago, would have made life easier for me and my husband.
Below are some of the more important things I’ve learned.