Out of the Darkness (page 4 of 4)

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Photographed by Shannon Taggart
Mom Karen Jacobson with Dylan at eight months old.
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Photographed by Shannon Taggart
Dylan's ocularist, an artist who crafts and paints artificial eyes, painlessly inserts acrylic shells under the baby's lids to make sure his face will form properly.
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Photographed by Shannon Taggart
Therapist Mi Koo is teaching Dylan how to talk by using mechanical cues.
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Photographed by Shannon Taggart
"Dylan does so many things other kids do," says his dad, Jeff, "sometimes I forget he can't see."
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Rare Blindness Birth Defect
Photographed by Shannon Taggart
"Dylan does so many things other kids do," says his dad, Jeff, "sometimes I forget he can't see."
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Cutting Through His Darkness

“You’ve got two weeks. By my birthday, you have to say Mommy,” Karen playfully tells Dylan after his session, as she grabs her 23-pound boy under his arms and hoists him to her hip. Dylan may be taking longer to find his way, but watching his progress from crawling to walking over the past year, the Jacobsons are filled with new hope for their son. In fact, Dylan can navigate the bottom floor of the house as well as his sighted twin, Jenna. And Dr. Gallin, who continues to coordinate Dylan’s care, still believes technology might find a way, someday, to give Dylan sight, and consults with researchers around the world about him.


At home, Karen is scrambling to make dinner. Zachary, Danielle and Jenna are all playing in the family room. Dylan alone is in the kitchen. Though his siblings don’t purposely exclude him, his limitations have hindered his social skills. Talking will be a turning point. Once he starts making words and sentences, which should happen over the next year, his social and practical skills will catch up quickly. He’ll learn Braille and attend kindergarten in a mainstream classroom just like Jenna.

For now Dylan seems content to explore the world on his own. His little hands feeling along the kitchen wall, Dylan makes his way to the hall and to the gold knob on the closet door. He fumbles with this new discovery and, hearing the click of the latch, pulls the door open. Giggles. He pushes it closed. Click. More laughs. For 15 minutes, he opens and shuts, hysterical laughter cutting through his darkness. Watching from the kitchen, Karen smiles as she realizes her little bear cub is opening his own doors and becoming a little less helpless every day.
From Reader's Digest - September 2007
 
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