Hope for Deaf-Blind Triplets -- Light in the Dark (page 3 of 4)

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Video: Light in the Dark
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Photographed by Michael O'Brien
Zoe's disabilities used to make her angry and withdrawn, says her mom, Liz. "Now she's such a happy kid."
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Zoe, like her sisters, begins each day with a bath.
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Sophie gets hairdo help from her dad before he attaches the external part of her hearing device.
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"The sky's the limit for these girls," says George, with Sarah (far left), triplets Emma, Sophie and Zoe, and their mom. "We just have to open the door."
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Bath Time for a Triplet
Photographed by Michael O'Brien
Zoe, like her sisters, begins each day with a bath.
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By then ... we were ready to collapse.

Daily Life

In a Wal-Mart near the Hookers' home, McKenzie Levert is taking Zoe shopping. A long-limbed 28-year-old, Levert stoops to let Zoe squeeze a toothpaste tube and try on some ponytail holders. In the toy department, the little girl climbs into an electric mini-car. With Levert's help, she presses the foot pedal. The ensuing collision is not serious, and Zoe signs, "More!"

Levert is a graduate of the two-year intervenor program at George Brown College in Toronto, Canada, widely regarded as the best in the world. She moved to the town of Spring to work one-on-one with the neediest of the triplets. At eight each weekday morning, she coaxes Zoe out of bed, then begins instructing her in the basics of daily living -- everything from hygiene and food preparation to navigation and communication. After bath time and breakfast, Levert leads her charge upstairs to a room with a child-size table and a cubby full of learning aids.

Levert reinforces spoken words with tactile signs. For each activity -- playing, baking, shopping -- she hands Zoe a flash card with the word printed in Braille and a symbolic object (a ball, a whisk, a plastic bag) glued on for good measure. There are shape-sorting lessons, vocabulary drills and Play-Doh sessions. By four, when Levert heads home, Zoe has an air of happy exhaustion.

For Liz and George, snagging an intervenor like Levert wasn't easy. Hiring three seemed impossible. The Hookers had decided they wanted a George Brown grad, but the going rate -- $50,000 a year -- exceeded the couple's annual income, and no insurance policy would cover it. Other families, they knew, were in a similar bind.

So the couple started a nonprofit called the DeafBlind Children's Fund. Their aim was to provide a miracle worker for any kid who required one. The fund's first beneficiary, however, was to be the triplet whose frustration level seemed highest. Sophie was at last beginning to grasp at language; Emma seemed relatively serene. But when Zoe wanted something and couldn't say what it was, she would punch herself in the face. "She had so much motivation," George says, "and nowhere to direct it."

In late 2006, the organization held its first fund-raiser, a charity golf tournament that netted enough to hire a George Brown alum for one year. Soon afterward, the couple went on the Dr. Phil show, and the celebrity therapist (after offering advice on handling their extraordinary stresses) announced that his personal foundation, in partnership with online lender Lowermybills.com, would put up $50,000 to cover the intervenor's second year.

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wrightla61, may God have mercy on your helpless, hopeless soul. Haven’t you heard of Helen Keller and the many opportunities that her life and her OWN efforts have given to other deafblind people like herself? Don’t you believe in giving each and every person, with and without disabilities, the choice of leaving their own imprint in the world? If all of Helen’s accomplishments were the product of her “hopeless insanity” 100 years ago, I'd like to see what these girls aren't capable of doing now.

By palomita924, on 02/15/2009

My name is Ebony Lewis and I have a 6 year old daughter and her name is Nhyla Lewis. When Nhyla was born the doctor's told me my daughter was deaf and she would be for the rest of her life. But like you mom I am believing in the Almighty God and I can't wait to hear what she has been thinking all these years. So her dad and I are believing God for a speedy recovery and i will do the same for u. May God continue to keep you in perfect peace and remember to always keep him first.

By Ebony007, on 11/05/2008

The misguided efforts of these doctors, determined as they are to save everything that has a pulse has condemned these children to a lifetime of hopeless insanity through sensory deprivation. And for what? To satisfy the hypocratic oath? God save us all from fools and zealots.

By wrightla61, on 11/04/2008

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