Hope for Deaf-Blind Triplets -- Light in the Dark (page 4 of 4)

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Video: Light in the Dark
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Photographed by Michael O'Brien
Zoe's disabilities used to make her angry and withdrawn, says her mom, Liz. "Now she's such a happy kid."
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Zoe, like her sisters, begins each day with a bath.
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Sophie gets hairdo help from her dad before he attaches the external part of her hearing device.
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"The sky's the limit for these girls," says George, with Sarah (far left), triplets Emma, Sophie and Zoe, and their mom. "We just have to open the door."
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Father and Daughter
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Sophie gets hairdo help from her dad before he attaches the external part of her hearing device.
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By then ... we were ready to collapse.

New Hope

Levert reported for duty last March. Since then, Zoe has made remarkable progress. She can sign 15 words -- five times as many as she learned in the years before Levert arrived. Once as nocturnal as Emma, she now sleeps soundly through the night. She's calmer, and her attention span is longer. She can brush her teeth, get dressed and grab crackers for herself.

Someday Zoe may learn to conduct a conversation, read a book, even hold a job or get married. But for now, says Levert, "it's amazing just to see her becoming a seven-year-old girl."

Zoe isn't the only member of the family whose life is improving. Thanks to Levert -- and a team of part-time domestic aides from a newly expanded federal program for the disabled -- the girls' parents are freer to pursue their own work. Keeping the household afloat through video and design gigs, the couple has so far raised $125,000 for the DeafBlind Children's Fund.

Liz and George can also now pay more attention to Sarah, whose math scores and smiles-to-scowls ratio have improved accordingly. They're homeschooling her and Emma and sending Sophie to kindergarten at a private academy. The morning scramble for the school bus has ended.

Emma worked with a temp from George Brown this past winter. She is next in line for a long-term intervenor, followed by the deaf-blind daughter of another local family, then -- ideally -- by Sophie. Ultimately, the fund aims to help hundreds of children, but there are immigration issues regarding importing intervenors from Canada. The Hookers are lobbying legislators to amend the rules; they're also supporting efforts to improve training for homegrown intervenors.

Meanwhile, Liz and George are thankful for the distance the family has traveled. At a neighborhood Tex-Mex restaurant one late-fall evening, a mariachi group serenades them. Emma's face registers what appears to be pure bliss; she has lately begun to show an interest in music.

Her mother watches her wistfully. "Someday I'm going to be able to ask her what she's been thinking all these years," she muses. "I can't wait to get inside my daughters' heads."
From Reader's Digest - February 2008
 
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wrightla61, may God have mercy on your helpless, hopeless soul. Haven’t you heard of Helen Keller and the many opportunities that her life and her OWN efforts have given to other deafblind people like herself? Don’t you believe in giving each and every person, with and without disabilities, the choice of leaving their own imprint in the world? If all of Helen’s accomplishments were the product of her “hopeless insanity” 100 years ago, I'd like to see what these girls aren't capable of doing now.

By palomita924, on 02/15/2009

My name is Ebony Lewis and I have a 6 year old daughter and her name is Nhyla Lewis. When Nhyla was born the doctor's told me my daughter was deaf and she would be for the rest of her life. But like you mom I am believing in the Almighty God and I can't wait to hear what she has been thinking all these years. So her dad and I are believing God for a speedy recovery and i will do the same for u. May God continue to keep you in perfect peace and remember to always keep him first.

By Ebony007, on 11/05/2008

The misguided efforts of these doctors, determined as they are to save everything that has a pulse has condemned these children to a lifetime of hopeless insanity through sensory deprivation. And for what? To satisfy the hypocratic oath? God save us all from fools and zealots.

By wrightla61, on 11/04/2008

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